Firstly may I thank you all for reading my ramblings as of yesterday we have had, since being here in America well over 3,000 hits on the blog! Mad...
We have settled quite nicely into a routine now here in America, the boys have a late night ish, and then they sleep till 8:30am which is a bonus.
So it was the usual morning routine ~ We managed to squeeze in a few calls home before PT this morning as we seem to be forgetting about the 6 hour time difference. I was taking Ben to PT again today as I needed to see Abby to hand over a memory pen. But with one thing and another we missed each other.
Ben was on fine form for his session today, although he did try it on but Erica was having none of it, she sure knows him already. He managed nearly 18 minuets on the treadmill, which was amazing as he has been finding it really hard after his second surgery. Next Erica brought in a balance beam! Ben had to walk (nose over toes!) heel to toe long the beam, this was hard work but he tried really really hard.
A chap from the splints Dept, came to sort out the problems we were having and took them off to fix them.
Next it was the wheelie chair, I did ask myself what on earth but seeing what he was doing made sense. He had to scoot forwards using his heels this he found hard and needed a lot of help. As for doing it backwards Ben found it a lot easier & ended up all the way down the hallway.
The chap brought Ben’s splints back and they seemed fine so all was good & it was time to go. Time really does fly during these session, Ben pushes himself so hard we do not need to interfere as we know he can push himself, Erica has just got him so sorted she knows what to say to him that we need very little input now.
Back home we were greeted by a very giddy Jacob so a quick lunch and we were off to the City Museum. The boys had heard from the Wardleworth’s about how exciting it was so they were really looking forward to it. It did not take long to get there as it was in downtown St Louis about 10 minute drive away.
The building look AMAZING the roof has a school bus hanging off it, can’t get much cooler than that. The museum is nothing like I had ever seen, Jacob was a little nervous but it was not long till he was sliding down the 10 story slide. Ben on the other hand found it frustrating, had he been more mobile in his walker I think he would have found it more fun but as he is mainly in his wheelchair now he was getting a little frustrated at times. But we found a few things he could do & later he managed to crawl through a lot of the cave and had a great time and got so dirty with it.
Damian's is really a big kid - Fact!!!
Could not have done this even if I tried - Fluke shot!!
After 4 hours it was time to go as we were all getting hungry and needed a shower.
Back home it was quick shower change and off back to Applebee’s for tea.
It is really lovely to be spending all this time together as a family, I know the reason we are here is for Ben but the fact that we decided to all come together I think has made it all the more special.
I nearly forgot
NEWS FLASH – Jacob has lost his second tooth!!!
I know Ben still has a long way to go to make his dream of walking unaided, but we can now see, after both surgeries and all the help and support from everyone that this is now not a dream but a reality.
Without all your constant help & support this would not have happened.
THANK YOU from the bottom of our hearts.
Charlotte XXX
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