I have now decided to do a 2weekly/monthly round up rather them waffling weekly, in the vain hope it’s more interesting!
Ben has been making good steady progress as we are all pleased with him. I think he has managed to grow AGAIN, which in itself causes a few problems. But all in all he is doing well.
The boys had a second week of half term un-like me who it was time to be back to work, so childcare was covered by Auntie Em & the Monkeys & Grandma Steph & Grandad Richard for the end of the week. The boys loved the fact they had more holiday then me, I on the other hand did not!!! The highlight for the boys was going to the Falconry Centre, Ben had already been with school but Jacob had not so they were both really excited. They came home full of stories of their adventures.
Ben continued with all his physio & extra sessions, we are having some good days and some bad but we knew this was how it was going to be. Ben on the whole is doing so well we are so proud of him word cannot express. One minor setback was an accident Ben had 2 weeks ago – he managed to fall over his best friend (who was lying on the floor) and break his finger on his right hand! This has not stop Ben one bit, he was so brave yet again.
We have hit a small plato with Ben at the minute, we (us as a family & all his physio’s) can’t decided whether this is due to him being scared of making the huge transition to ‘NEW’ Ben or whether he still needs more help and support. We are fully aware that Ben is always very conscious of how he looks & acts in front of his peers & other, the next stage on his journey is a big one and a stage which Ben has never been able to achieve before. After speaking to all and words of advice from our wonderful support network of other SDR families online, we have introduced crutches. Ben was not so impressed at first but has proven to be quite a natural. The next step however his HUGE, we need to reduce & finally take away his walker. We had a battle in April when we decided to take his wheelchair away, but sometimes like a plaster it just needs whipping off/away (so to speak!!) Ben has used a walker every day since he was 2 and half years old; this is in sense part of his body in his eyes. We are trying to reassure him and give him the support he needs to make this transition and succeed and achieve his goal. We Ben uses his walker he never get a good momentum like we do when we walk, so hopefully he can see how fast he can progress with his crutches. When I discussed it briefly with him I could see the utter fear in his eyes, I just hope that it all goes smoothly and he soon walking with confidence with his crutches.
The BIGGEST event over the past few weeks has been... Ben’s extension is finally ready. After 2 and half years of consistently fighting Bradford Council to get what Ben needed to meet his ongoing needs. Dave our wonderful build arrived very early on 21st March to begin the transformation of the house. After all the dust, problems, choosing & other glitches the day finally came Friday 17th June 2011. Ben was finally in!
This could not have come at a better time in Ben life, this are getting on top of him and I think his pre-teen hormones have arrived and he needs his own space on only away from us but Jakey as well. I have to say he has very good taste, everything he has picked for the room matches perfectly. Ben did allow Jakey to sleep in with him for the night which was very kind as I knew he really wanted to stay on his own.
With his 10th Birthday around the corner it will be great for him to have his own space to have sleepovers with his mates – in a Jakey free environment.
Charlotte xx
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