Well as another week begins Ben seems to have turn yet another corner, he is stronger and happier within himself and more confident in every way. He is wearing him DAFO’s ( short splits) all day everyday and using his walking stick more – he does however still occasionally need to use his wheelchair during lunch playtime as he still feels a little less confident in the playground. We have agreed to leave it there until after Easter.
Sunday 27th March
Well what to do today, the sun was shining the birds were singing!! Well not exactly but you get the picture. We decided to go for a bike ride in the woods, well the boys were on bikes. Ben had not been on a bike ride since we were in St Louis, he has been riding around at home but not gone too far so this will be interesting. It was so nice to see him having fun on his bike with Jacob. Ben loved being able to control the bike more & need less help for us.
Monday 28th March
Another week closer to Easter! Ben is now counting down the sleep to his weeks residential with school, I so excited for him it will be so amazing for him. Today was a slow day nothing really to report ~ Ben worked really hard with his physio with me, we seem to be working well together now. We used the vestibular board, Ben stood & balanced on the board and I was then able to move the board – This is something he has NEVER been able to do before SDR.
Tuesday 29th March
The builders seem to be moving very quickly with the building work, still haven’t got my head around the fact that they are here let alone build!! Ben is starting to think about how he & what he wants in his room. You know the usual list from a 9 Year old, TV, laptop, Wii you name it.....
Physio was ok today although he did seem a little tired but he managed well. He is making really progress and you can see the muscles forming on his legs and he even has the starting of an arch on his foot, he has always had really really flat feet before so this is a huge change.
The boys played outside gain tonight which not only is great to see but so good for Ben instead of sitting in front of the TV of Wii.
It was also parents evening, sometimes it not that easy for me as I work in a school I sometime know too much. But I decided to go with my mummy head on and just listen and see what they have to say about our boys. WOW both boys got amazing reports – I am so proud of them both. They have settles back into school life quickly and are working & trying hard.
Wednesday 30th March
When I collected Ben off the he seemed full of life and walked (with his walker) nearly all the way home which was a huge improvement over the last couple of weeks. He seemed to be really pleased today perhaps the fact that he was not having physio after school had something to do with it... I did manage to fit in a few stretches. It was basketball training tonight Ben just loves going and gets so much out of it, just don’t enjoy pealing him out of bed on a Thursday morning.
Thursday 31st March
Double physio today for Ben I hope he manages it!!
Like the amazing super star Ben is he has done us all proud again pulling off 2 amazing physio session. He is just trying so hard and now he is seeing improvements in his mobility. He walks so well and with less prompts from us. He is making daily progress and inching every closer to his dream of walking unaided confidently. He was a little quiet this evening I think due to the fact he had 2 full on sessions of physio. He still makes me laugh & smile with his stories & jokes; he is turning into one amazing young man.
Friday 1st April
The end of the week is finally here; thank goodness it’s been a long long week.
Ben has been on form all week this week trying hard in all areas including homework, and trying to be more organised which he is managing really well. He managed lots of standing activities during his session to day and even had ball thrown at him he stayed on balance. At the end of the day Ben was excited as not only had we finally booked our summer holiday but Grandma Linda had a new car so he was desperate to go and see it after tea. I think it passed both the boys inspection!.
Saturday 2nd April
Busy day today physio & aqua therapy.
It was early physio this morning so we all had to be up early and sorted. He worked really hard for the whole hour, and then they boys went off into town for something I was not to know about!!!!
In the afternoon Ben went off for his aqua therapy session he was again so excited to be going as he had a great time last week – he came back shattered but having had a great time.
Well that’s another week gone, lots happening over the next couple of week so no doubt I will post it on here.
Thanks again for all you support & messages
Charlotte xxxxx
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