Sunday 3rd April ~ Mother’s Day
My boys are amazing, yes they drive me mad but I love them so very much. They were so excited about the prezzies & cards they had for me they woke at 6AM!!!! The afternoon I took the boys to see Hop at the cinema which we all wanted to see well actually they did I wanted to see Rio but it’s not out till next week – boo. It was lovely afternoon with my boys, on the way back we stopped to wash the car. The boys thought this was great fun watching mummy was the car. Although Ben did open the door while I was spraying the car with water, luckily I was at the other end of the car so no damage was cause.
Monday 4th April
And here we are another week has come round again; at least the end is in sight. Not much to report today Ben had an appointment with his osteopath after school, Ben loves going to see Amos they just laugh through the session. He was impressed with his new party piece getting up from the floor by himself. The rest of the evening was just spent arguing about the pros & cons of bidding on eBay for Lego figures!!!!!
Tuesday 5th April ~ Appointment with Mr Tang Ben Orthopaedic Surgeon
Today was an exciting day for Ben & me we were going to see his Orthopaedic Surgeon Mr Tang, we last saw him in November just before we went to America. He was very support of the whole procedure and was excited to see how Ben had got on. As we walked into the room I could tell he was itching to get his hand on him, but first the paediatrician (it was join clinic with paediatrician, Mr Tang and physio) asked us all about what had happened, so I talked them through from surgery to coming home, they had all seen the Calendar piece and had even read the blog! Ben was happy to show them what he could do, but first they wanted to see for themselves so he climbed up on the bed so they could see. Mr Tang was so excited he could not believe the difference in Ben’s measurements and how the spasticity had now gone. He also commented on how Ben looked less tense and looks happier in himself of which I had to agree with him – Ben is so much happier now than he ever has been. It is great to see but I do half feel so guilt that he has had to put up with all of that for so long, life was so hard for him – but now he has a brighter future Thanks to Dr Park & his team. We both came away feeling really happy. Oh he walked in with his sticks to show Mr Tang how well he can do it now.
Wednesday 6th April
Ben had another great session today ~ he can now sit to stand balance then walk a few steps then balance, then with a little bit of help walk backwards and sit back on the chair. He is great progress this week so I hope that he can maintain it while he is away next week. I do think the week off physio has come at a good time for him as it has been on very long term and he has managed really well with everything we have thrown at him. Basketball training was quiet tonight as Leeds schools are on holiday this week so it was a great training and Ben was pushed to train really hard ~ he was so shattered when he came home.
Thursday 7th April
It was another busy day, I collected Ben early from school for his physio session with Laura. He was a little tried but after his (large) snack in the car on the way back home he perked up a little. Laura was ready for a great session as Ben was, not long after they started she called me into the front room she showed me what Ben could do. Even in just 5 days he was now able to use his theraband and push his foot up and down. This may seem small to you but for Ben this is HUGE he has gained so much strength in his ankles over the last 2 weeks makes me so proud of all the hard work he is putting in. After Jacob came home the boys played out for a hour or so Ben using his walker, he using he wheelchair less and less now. After Easter it will not be going to school so this is great to see.
Getting bigger!!!!!
My little man!!!
Ben practising sit to stands in the mirror!
Friday 8th April
The sun was out today which was lovely, the boys both came out of school so tired they just wanted to go home and play. I just had the last final chats with school about next week and we were off home to play in the sun shine. Ben was chatting about his trip next week; I am so proud of him not only going for the whole trip but been realistic about what he will be able to do. School and the centre have got it all sorts and I have absolute faith in them. Ben will not only have an amazing time but learn a lot about himself. He will no doubt come back with 4 sets of clean clothes and not had a shower all week but who cares.
Saturday 9th April ~ Weekend away!!
During physio (his last proper session of a week!!) this morning Ben stood on one leg, Before SDR this was impossible for Ben to do, it just shows you how hard he is working to gain all the muscles he need to help him stand, balance & walk. Proud Mummy! Then at 1pm the boys were handed over the Grandma Linda and we were off up to Newcastle with our friends for a night away.
Ben aqua therapy was another good session he worked really hard on the body board and you can see he is getting stronger every week. We are lucky to have found this for him as he doesn’t really realise he is working he just enjoys it so much.
As Ben is away next week – fingers crossed he will be writing or helping write the blog so he will fill you all in on what he has got up to on his very exciting first residential trip with school.
Well done Ben. You are doing fantastic.
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