Sunday 20th March
What a lovely quiet day we had – Oh apart from having to clear out the conservatory due to the builders starting work on Monday and it has to be clear as it will be demolished first thing. Firstly it has taken 2 ½ years to get to this stage after applying, assessments, offers, rejection, plan, plan, more plans & finally all approved for a bedroom & downstairs toilet for Ben – we were told it should take from start to finish including building 18 month max we are now looking at 3 years in total!! But the time could not be better – Ben has something very special to look forward to and will help with his rehabilitation no end!
The upside was that the boys played out for nearly the whole day & Ben was using his walker more and short splints which was great to see. Then it was the usual Sunday night routine homework, reading, bath & early bed for all of us.
Monday 21st March
8:15am on the dot the builders arrived!!!
Ben took his sticks to school today I am hoping he will start to use them. He also seems to be tolerating his short splints all day but by the end of the day he says his feet hurt.
By the time I got home at lunchtime the conservatory had gone, which was great to see as it has only been a sorting place for the last 2 years. The boys were eager to see what had happened during the day, Ben was getting excited to see the starting of his new room.
Tuesday 22nd March
Ben was up early today and raring to go, which was lovely to see as he keeps telling me Tuesdays his worst day of the week. Jane was due after school for physio one of our only 2 sessions by professionals this week the rest is down to mummy, joy. Ben again worked the whole hour with little fuss which was lovely to see. He even (for the first time ever without prompting) walked up the stairs one foot after the other he usually always leads with his right. I finally got hold a man I have been trying to get hold of all week, he runs a hydrotherapy session at new pool – we have booked in for his first session on Saturday.
Wednesday 23rd March
Mid-week at last it seems to be a really long week this week. Anna was due to come after school which was great. Ben can off the bus looking really shattered but did manage to walk part the way home before asking to be pushed! In the morning Damo had mentioned he was worried as Ben was walking with his right foot turned out, so I was going to ask Anna when she came. Ben had said that Mrs Fox from school had rung to ask the same thing and it was more evident on when he used his sticks. She said that he just needed to work on more foot exercises and use his sticks gradually. We did have an email to say hopefully his new DAFO’s will be on there way soon. I must add he is wearing his DAFO’s all day everyday which also means he can use his smaller shoes. And of course it was wheelchair basketball night so Ben was full of beans.
Thursday 24th March
Ben got himself up this morning which was new as usually we have normally have to drag him out of bed. The building working is coming on rapidly well looks like it, but I am finding it hard to get things sorted & having to pass through the builders’ yard to get to the garage is not much fun, but I will have to get over it as they say. For a treat, the sun was shining so I decided to take the boys for an ice cream in the park after school, Ben did promise to work extra hard during his physio so off we went.
I am finding physio quite hard at the minute as I & Ben are not seeing much improvement, but we have been told by all his physios that he is making huge progress. I did however see that he is able to do more of his foot exercises and the movements are bigger. I have not been as strict with his physio this week, don’t get me wrong he still has & will have all his sessions just not as long and intense. Roll on the weekend.
Friday 25th March
Ben is now a Toe tapping heel rising pro, I have always been a little dubious about the heel raising exercise as he use to walk on his toes, but know it is now important that he learns how to do it and to use the right muscle to help him walk properly. Again it was a lovely day so the boys happily played outside for an hour after school, I am hoping that once the clocks change they will play out more as it really good for Ben to do more walking. The concrete truck arrived this afternoon to fill in the foundations of Ben’s room, It seems to all be going quite well ~ well so far anyway!!!!!!!!!!!!
Saturday 26th March
Damo has to do physio today so it will be interesting to hear what Ben thinks of it.. Well he got him to do 5 minutes on the treadmill at 1.3 speed! Not bad :o)
I knew that he was going to the aqua therapy session later so I was no too worried. Grandma & Grandad paid us a visit – I think Grandad wanted to check up on the building work myself. The aqua session was FANTASTIC & more importantly Ben loved it. We have managed to book in for next Saturday as well and hopefully that will be his slot. It is private and we have to pay but he really looked like he had workout well after so it worth it.
Charlotte XXXX
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