Ben’s challenge this week is to complete double hat trick of physio sessions, that’s 6 out of 6!!!!
Sunday 13th March
Damo & Jacob had decided to walk up & down Ingleborough this morning! I don’t think Jacob would managed it but I was so pleased when Damo rang me to say he had managed it and was fast asleep in the car – Bless him – We were so proud of him.
Ben & I had decided to go cheer on the Leeds Spiders for the last crucial game of the season which if won they would be promoted to Division 1, so an exciting game to be watched. It was one amazing game and the brilliant Spiders won 58-35. Go Spiders.
Monday 14th March
Another Monday is here again, how did that happen! We had decided that this week we would try Ben in his DAFO’s (small Splints) and see how he gets on. I thought he might not be best pleased with this as he has to concentrate more wearing these ones but he was willing to try. To my amazement he came out of school, a little more tired than usual but when I looked down I could se why, he had worn them all day!! Mummy’s physio today – Ben was even asking to do certain (more challenging) exercises which was great to hear. He had a great session and then when out to play with Jacob for about an hour with his walker the first time since we have been back, he is still favouring his wheelchair.
Introducing 'BOB' the physio ball!!
Tuesday 15th March
The boys are counting down to Friday as its Red Nose Day. They have chosen there outfits & have sent me out on a mission to find red hair spray! Which I will live to regret I’m sure!!! Again today’s physio when really well Ben worked solidly for the whole hour – MTV seems to be working! Ben managed to wear his DAFO’s for half the day, so again not bad. But I am a little concerned as when he gets tired his knees bend, but I guess this will come when he gains more strength in his legs. All in all it was a good day – Ben says he doesn’t like Tuesdays – don’t know why!!
Wednesday 16th March
Ben was a little low this morning – mid week blues! But soon perked up when he realized it was basketball tonight. He really loves his training sessions with the Spiders, he get so much out of it. The added extra this week was that he was getting measured for a new sports chair by RGK so he was a little more excited. So off they when to school, I did find red hair spray much to the boys delight, maybe not mine but it will be Damo who will be washing it out on Friday night as I will be out!!! Eck! Ben again worn his DAFO’s for half a day but he was so tired when he came off the bus, not surprising really he is working so hard not only during physio but all the time, he is muscles are getting stronger everyday and as we only see a little difference everyday other see a huge difference weekly. It was again late by the time we got back from Morley after training, Ben was so happy to have chosen his new chair it’s even in GB team colours, just need to wait 12 weeks for delivery! It will be here for the start of the new session at least.
Thursday 17th March
DAFO Update – all day again.....
Ben was so tired when I collected him from school, he just seemed pale & ‘out of sorts’ but as always after some food & a drink he was ready for physio # 4 this week ~ he was still on track for his challenge although I was a little concern that he was so tired. At the end of the session Laura mentioned that yes he was tired but also she could tell his muscles were tried as well. This was not exactly what I was expecting – yes I know he is tried because of all the physio he is doing but I just wondered if his body was tell us to ‘back off’ a bit!!! His physio is a little different next week as 2 of his physio’s have annual leave – so it down to me to fill in!!! So I think a gentler week is called for. Ben's new home physio sticks arrived today so hopefully his others will go to school next week..
Friday 18th March ~ Red Nose Day
DAFO Update – all day again.....
For the first time in ages the boys were up & dressed straight after the alarm when off! Isn’t it funny how non-uniform days have that effect. Both boys excited to have sprayed red hair, I was also as I will be out at bath time (Seeing The Script in Manchester) so it was up to Damo to sort & clean them both!!!
Ben was full of beans today after school and the report from Anna was physio had again gone really really well. One more session till he reaches his target! The evening was a quiet boys night in so I did ask what went on, sometimes it’s best not too.
Saturday 19th March
Can he do it, the double hat trick!!!!!!!
Oh yes he can – Ben was clearly shattered but pulled off another great physio session so that is 6 out of 6 this week, full marks to Ben. Once Laura had gone Damo sorted his bike out so then the boys spent the next hour outside enjoying the nice weather (for a change) We did have to revert back to his NHS splints as his USA ones are too big for the footplates, but the difference was clear to see his knees were no longer together when he cycled. The rest of the day passed in a blur as usual for the weekend.
I am so proud of the way Ben has thrown himself in to his physio this week. It has been a hard week physically for him. I think the past 2 months are slowly catching up on him and we are hitting a bit of a plateau but this is to be expected. Next week will be a little quieter for him but we will still endeavour to continue with his regime, but with a gentler approach.
Charlotte xx
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