We have met so many many amazing people throughout out appeal for Ben. Ben was offered a corporate ticket to see he’s beloved Liverpool by the wonderful Jenkinson Family & our friends at Abzorb, to say Ben was a little giddy was an understatement (as was Damian). Ben loved every minute of the trip and was so well behaved. To top it off Liverpool won 3-0. Ben even bought a scarf & football and joined in with the famous song ‘You’ll Never Walk Alone’ quite apt really! After he got home he was on a high for a while but soon he was very tired and grumpy – he has had a rather busy couple of days.
Monday 2nd May ~ Bank Holiday
Busy day today as usual, Katie a friend we meet when we did our first interview with Calendar back in June last year was coming over to do a bit of filming and interview me for her final piece of Uni. Then we were heading off up to our friends the Murray’s for a play & BBQ. The boys were so good during the filming just got a bit fed up while I was being interview & Ben had a small accident which was totally my fault so he was a little grumpy, but we managed it, I hope anyway. Then it was a quick turn around and off up to Addingham. It’s so lovely to be able to spend time with friends & the children all play so nicely. God job really as we are all going on holiday together this summer!. Anyway the afternoon passed so quickly then it was time for home as it is back to school tomorrow......
Tuesday 3rd May ~ Back to School – only for 4 weeks though!!!!
Well the Easter holidays were over and it was back to the normal routine of school & work. To be honest we have had such a great time over the two weeks we were all ready to got back – well as ready as you can be. The boys were ok but needed a lot of prompting to get sort this morning also we had made a deal with Ben that his wheelchair would not be going to school with him, just his walker & sticks! He was fine with this I just hope he is not too tried when he gets home. It was physio with Jane today Ben was on fine form and worked really hard. We have not really done as much physio as I would have liked over the past couple of day but he has walked a lot so I’m hoping that helps a little. No Monkey's today :0( We missed them lots.
Wednesday 4th May
2 very tired boys arose from their beds this morning; the reality of being back at school had hit them. So it was the usual Wednesday for us all. So it was School, home, physio & basketball. This was his last NHS slot on a Wednesday then it’s over to Mummy! Again physio went well he did seem a little tried afterwards but promised he was ok to go to basketball. It was my turn to take him to basketball this week, I usually just chat with other parents & watch but this week Loretta & Ben had other ideas – yes I joined in. I have to say it’s a lot harder than it looks, but my bingo wings are slightly smaller!!! Ben is playing so well now he has been asked to train with the Yorkshire U15’s this year so a few trips to Sheffield is on the cards for us.
Thursday 5th May
It is always hard to get Ben out of bed on Thursdays after the last night before.
Yesterday I managed to speak to a local gym and hopefully starting next week Ben will be using the gym on his Thursday sessions with Laura, so lots of muscles build – fingers crossed. Today was yet again another busy one, Ben’s extension is externally completed just the internal bits and bob to get sorted and window to be put in. Ben is eagerly awaiting being able to choose his decor, I however not to impressed with his current choice red walls – me thinks not. He again worked hard in his pysio session doing more and more each time, but towards the end he was fading a little. He still managed to watch TV & play on the Wii, go figure!!!
Friday 6th May ~ 4 Months Post Op.
Today it is a year to the day we got the email from Dr Park & his team saying that Ben had been accepted for SDR, what a year it’s been. Ben has been asking a few times lately when will I actually walk!!!
I have struggled to answer, yes his mobility has improved HUGELY but no-one really knows. He has completely changed his whole standing balance and now it just building up muscle strength & stamina which of course takes time. It is only 4 months and what he has done so far we are so very very proud of as he is the one who is trying so hard & putting all the work. So another (short) week is over the boys are very tried as we all are which is mad to say we have only been back 4 days! Anyway forward planning in place with Jacob’s birthday just around the corner and Ben’s not far behind it’s as busy as every in the Smithsons household.
Look at my striaght back!
Saturday 7th May
Physio & aqua therapy are on the cards today so just the usual. So they day passed by really quickly as all weekends do. I think it worked out better today having physio first then aqua as Ben did seem a little tried during physio but as always works really really hard towards the end. Today Laura tried a new exercise standing on one leg (with a bit of support) and the other leg resting on a football. This was amazing to watch he even managed to balance for a few seconds. This again is a huge step forward Ben, Laura told him it would not belong before he will be doing it all by himself which of course made him smile. Then it was off to Aqua Therapy, Garry decided to take the small floats off Ben and get him to dive to the bottom of the shallow end of the pool to collect various items. Ben came out very happy but shattered. As Ben is now not wearing through shoes in 2 weeks, he has been itching to get some football trainer so I gave in and a shopping trip it was, after a small food shop much to the boy’s disgust! So he chose a pair of BRIGHT ORANGE ones – he knows how to stand out!!! Anyway that’s another bust week in our house!
Charlotte xx
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